News
- Inaugural Distinguished ALS Lecture at the German Center for Neurodegenerative Diseases (DZNE)Patrick Weydt, Senior Physician at University Clinic Bonn · LinkedIn On the heels of #bonnbrain26 we were able to top off an extraordinary week at German Center for Neurodegenerative Diseases (DZNE) with the inaugural #DZNEALSLecture by #C9ORF72 carrier and scientist/clinician extraordinaire 👩🏻⚕️Yentli Soto Albrecht, PhD. It was a privilege and an inspiration to learn about…
- ADPD 2026 Recap: Day 5 Highlights from CopenhagenAD/PD – Advances in Science & Therapy · LinkedIn #ADPD2026: Day 5 Highlights, Reflections, and Excitement from Copenhagen! 🌍✨ In the last recap video, Yentli Soto Albrecht, PhD, an MD-PhD student at the University of Pennsylvania, and Priya Suman, Ph.D., a neuroscience candidate at The Ottawa Hospital Research Institute, joined us to share highlights from…
- Penn Medicine: Yentli Soto Albrecht, PhD at ADPD 2026Penn Medicine, University of Pennsylvania Health System · LinkedIn Yentli Soto Albrecht, PhD is an MD–PhD in training, a genetic carrier 95% likely to get ALS and FTD in the next few decades, and a patient advocate working to change her own future and the lives of others. With support from Penn, she’s advancing powerful…
- ADPD 2026 Recap: Day 1 Highlights from CopenhagenAD/PD – Advances in Science & Therapy · LinkedIn #ADPD2026: Day 1 Highlights, Reflections, and Excitement from Copenhagen! As AD/PD™ 2026 kicks off, we’re starting strong with inspiring sessions and thought-provoking discussions. Hear from Baayla Dimitri Catharina Boon, a Research Associate at Mayo Clinic and one of the Junior Faculty Award winners. Also joining our…
- She has an ALS gene and is working to end ALS. Yentli Soto Albrecht on the GOALS PodcastYentli Soto Albrecht, PhD, @searchforaselfcure joins the ALS United Mid-Atlantic GOALS Podcast to talk about her family’s genetic history with ALS and her personal mission to end the disease through research. In this episode, Yentli talks about what motivates her, what she’s learned, and how research can bring hope and motivation to all. Learn more…
- Penn medical student, who is genetic carrier of rare form of ALS, on mission to develop gene therapyA medical student at the University of Pennsylvania is on a special mission in the research lab that could save her life. Yentli Soto Albrecht’s battle is against ALS, a fatal neurodegenerative disease. She is a genetic carrier for a rare form of disease. It’s a race against time in the research lab for Soto Albrecht,…
- A New Generation of ALS ResearchersTarget ALS · March 9, 2026 Yentli Soto Albrecht is an MD-PhD student at the University of Pennsylvania who brings a unique perspective to the ALS community as a scientist, a physician-in-training, and a C9orf72 expansion carrier. After losing her father to rapidly progressive familial ALS in 2024, she redirected her work toward neurodegeneration research…
- Racing the Clock: When the Genetic Carrier Seeks to Become the Architect of the CureThe Rare360 Editorial Team · Feb 26 In rare disease, urgency is often discussed in abstract terms — pipeline acceleration, regulatory timelines, translational gaps. But for some, urgency has a date attached to it. Yentli E. Soto Albrecht, PhD, is an MD-PhD student at the University of Pennsylvania whose life and work converged in August…