News & Media — CureC9 in the Press
News
Neurodegeneration Conferences: In Search of a Self CureFrom Baltimore to Belgium, Yentli Soto Albrecht, PhD has spent the past year attending ALS and FTD conferences as a patient-scientist on a mission. This is a chronological account of every stop in her In Search of a Self Cure conference series.
LinkedIn / ESRF — “One Mutation, Two Diseases” Seminar and ID16A Beamline TourView the LinkedIn post about the ESRF visit
LancasterOnline — Honoring a McCaskey Teacher and Working Toward a Cure for ALSRead the full article on LancasterOnline
SDLancaster — One More Push: A Community Carries Forward a Legacy at McCaskey HSRead the full article on SDLancaster
Fox29 — Video Segment on ALS ResearchWatch the Fox29 video segment
Philadelphia Inquirer — University of Pennsylvania ALS Cure ResearchRead the full article on philly.com
Inaugural Distinguished ALS Lecture at the German Center for Neurodegenerative Diseases (DZNE)Patrick Weydt, Senior Physician at University Clinic Bonn · LinkedIn On the heels of #bonnbrain26 we were able to top off an extraordinary week at German Center for Neurodegenerative Diseases (DZNE) with the inaugural #DZNEALSLecture by #C9ORF72 carrier and scientist/clinician extraordinaire 👩🏻⚕️Yentli Soto Albrecht, PhD. It was a privilege and an inspiration to learn about…
ADPD 2026 Recap: Day 5 Highlights from CopenhagenAD/PD – Advances in Science & Therapy · LinkedIn #ADPD2026: Day 5 Highlights, Reflections, and Excitement from Copenhagen! 🌍✨ In the last recap video, Yentli Soto Albrecht, PhD, an MD-PhD student at the University of Pennsylvania, and Priya Suman, Ph.D., a neuroscience candidate at The Ottawa Hospital Research Institute, joined us to share highlights from…
Penn Medicine: Yentli Soto Albrecht, PhD at ADPD 2026Penn Medicine, University of Pennsylvania Health System · LinkedIn Yentli Soto Albrecht, PhD is an MD–PhD in training, a genetic carrier 95% likely to get ALS and FTD in the next few decades, and a patient advocate working to change her own future and the lives of others. With support from Penn, she’s advancing powerful…
ADPD 2026 Recap: Day 1 Highlights from CopenhagenAD/PD – Advances in Science & Therapy · LinkedIn #ADPD2026: Day 1 Highlights, Reflections, and Excitement from Copenhagen! As AD/PD™ 2026 kicks off, we’re starting strong with inspiring sessions and thought-provoking discussions. Hear from Baayla Dimitri Catharina Boon, a Research Associate at Mayo Clinic and one of the Junior Faculty Award winners. Also joining our…
ALS, The Wound We Can’t Heal“Eric Dane’s death is a reminder, all too painful, that ALS remains incurable.” Yentli reflects on grief, her father, and why she will never stop fighting for a cure.
She has an ALS gene and is working to end ALS. Yentli Soto Albrecht on the GOALS PodcastYentli Soto Albrecht, PhD, @searchforaselfcure joins the ALS United Mid-Atlantic GOALS Podcast to talk about her family’s genetic history with ALS and her personal mission to end the disease through research. In this episode, Yentli talks about what motivates her, what she’s learned, and how research can bring hope and motivation to all. Learn more…
CBS 3 — Video Segment on Penn Medical Student Who Is a Genetic Carrier for ALS on a Mission to Cure Herself.A medical student at the University of Pennsylvania is on a special mission in the research lab that could save her life. Yentli Soto Albrecht’s battle is against ALS, a fatal neurodegenerative disease. She is a genetic carrier for a rare form of disease. It’s a race against time in the research lab for Soto Albrecht,…
Penn Medicine “Threshold” Feature and Distinguished Alumni Speech (Perelman School of Medicine, Fall 2025)Yentli is featured in Penn Medicine’s Threshold magazine (Fall 2025, pp. 11–13) and shares the video of her McCaskey Distinguished Alumni speech — poured out with grief, determination, and hope.
A New Generation of ALS ResearchersTarget ALS · March 9, 2026 Yentli Soto Albrecht is an MD-PhD student at the University of Pennsylvania who brings a unique perspective to the ALS community as a scientist, a physician-in-training, and a C9orf72 expansion carrier. After losing her father to rapidly progressive familial ALS in 2024, she redirected her work toward neurodegeneration research…
Racing the Clock: When the Genetic Carrier Seeks to Become the Architect of the CureThe Rare360 Editorial Team · Feb 26 In rare disease, urgency is often discussed in abstract terms — pipeline acceleration, regulatory timelines, translational gaps. But for some, urgency has a date attached to it. Yentli E. Soto Albrecht, PhD, is an MD-PhD student at the University of Pennsylvania whose life and work converged in August…
Caring for Patients as a Medical Student in the Same Penn ALS Clinic Where My Dad Received Care“Today I returned to the same ALS clinic where my dad was diagnosed. The same exam room. But this time…” Yentli reflects on caring for patients at Penn’s ALS clinic.
“Unreality & the Yellow Blouse” — Apostrophe and Ampersand, Issue One: FirstsYentli’s creative nonfiction essay “Unreality & the Yellow Blouse,” published in Apostrophe and Ampersand Issue One: Firsts. Originally anonymous — now hers to claim.
A Year in Review: HopeA letter to herself: Yentli looks back at December 2024 — four months into grief — and tells that version of herself what the year ahead held. A year in review: hope.
My Story, of Losing My Dad the Way I Will Die“I don’t fear death itself. I fear dying the worst way imaginable: locked in my body with ALS.” Yentli reflects on losing her father and facing the same fate.
Reflection on Receiving the 2025 McCaskey Distinguished Alumni Award“What are you going to do after you cure ALS?” — A McCaskey student’s question stopped Yentli in her tracks. She reflects on receiving the 2025 Distinguished Alumni Award.
Tribute at the McCaskey High School Library Dedication in Honor of Frank AlbrechtThe School District of Lancaster and McCaskey High School named their new library after Frank Albrecht — the late, beloved “Brother.” Yentli shares a tribute to her father.
Going Public: “Watching Him Die of ALS the Same Way I Will”“Watching him die of ALS the same way I will was the most painful thing I’ve ever experienced.” Yentli goes public as a C9orf72 genetic carrier and patient-scientist.
