Help find a cure
100% of Your Donation
Fuels Research
Most research donations lose a large percentage to administrative costs.
Our funding model for CureC9 is different. All tax-deductible donations flow through Everything ALS, a 501(c)(3) nonprofit, yet EverythingALS takes nothing.
100%
Goes to Research Projects
Projects funded in
Alternative ways to support ALS/FTD research
• Support this work broadly: An unrestricted fund is split evenly between End the Legacy, which supports the genetic carrier community, and research projects driven towards curing genetic ALS/FTD. Link pending.
• Push-Ups for ALS: Co-fund critical research with prominent ALS Research organizations. 100% of donations flow to research. (Link out to the web page)
Participate as a Patient or Carrier
I’m a patient or genetic carrier who wants to participate in observational studies.
- Recruiting studies
- Genetic carriers → End the Legacy
- – ALS patients → https://www.all-als.org/all-als-assess-study/
- – FTD patients → https://www.allftd.org/participate
Non-Monetary Help
Your support is critical in the race against time. This is a hub for directly funding scientific breakthroughs.100% of Your Donation Goes to Research
Help with a specific project
Global C9orf72 Data Registry
C9orf72 research data is scattered across hospitals, universities, and countries. The most valuable samples in the field come from carriers who were tracked before and after their disease began — blood, spinal fluid, and clinical records from when they were still healthy, and again after symptoms started.C9orf72 Stem Cell Bank
Drug companies and researchers need cells from C9orf72 carriers to test potential treatments. Until now, getting those cells has been difficult, expensive, and inconsistent.Accelerating Drug Candidates into ALS
There are drugs that have been tested in humans for other conditions and shown to be safe that could work for ALS, but that have stalled on the way there.Novel Biomarker Platform
The goal of this project is to develop a new kind of blood test for ALS. Most diagnostic tests look for one molecule at a time. Like listening to an entire orchestra instead of one instrument, this platform uses nanosensor technology to read patterns across many molecules simultaneously.ALS Progression Biomarkers
Right now, doctors cannot reliably predict how fast ALS will progress in a given patient. This project is building algorithms that predict disease trajectory using clinical and genetic data.Immune Response and Therapeutic Windows
The brain has its own immune system. In C9orf72 disease, immune cells called microglia appear to start out protecting neurons and then, at some point, we think they turn harmful.Protein Aggregation Mapping
Some C9orf72 carriers get ALS, others get FTD. No one knows why. This project uses one of the most powerful imaging facilities in the world
