My Story, of Losing My Dad the Way I Will Die
“I don’t fear death itself. I fear dying the worst way imaginable: locked in my body with ALS, locked…”
In this deeply personal reflection, Yentli articulates the specific terror of her genetic reality — not death in the abstract, but death by ALS: the slow paralysis, the loss of breath, the mind locked inside a failing body. She shares what it means to carry this knowledge and to have watched her father die exactly this way. And she explains why she keeps going: because the alternative is accepting a fate she is not yet willing to accept.