Drug companies and researchers need cells from C9orf72 carriers to test potential treatments. Until now, getting those cells has been difficult, expensive, and inconsistent. This project is building the first commercial bank of stem cells derived from C9orf72 carriers, available to any researcher or company in the world. Four percent of all proceeds go back to the C9orf72 community. It is a permanent resource that, once built, will keep fueling drug discovery long after any one project, or person, ends.
Partners:
- BrainXell
- ALS TDI
- End the Legacy
- CHOP
What this project needs:
- C9orf72 carriers willing to participate. The bank is operational and cells are being transferred, but building a representative collection requires more carriers to sign up and donate samples. If you carry the C9orf72 expansion and want your cells to be part of finding a cure, this is one of the most direct ways to contribute. Reach out to us.